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Doctors said I was too young to have endometriosis at 13 - I had to take morphine to cope

BBC News Health ·
Doctors said I was too young to have endometriosis at 13 - I had to take morphine to cope

Every month, at about the time of her period, Grace has to be taken to hospital.

She is often in so much pain her parents have to carry her to the car. She can wait hours to be seen in A&E, only to be sent home in tears with more strong painkillers.

For a long time, Grace - who's now 14 and is from Yorkshire - felt doctors were dismissive of her pain. "I feel like I was seen as a girl who didn't want to go to school and was being dramatic," she says.

She was given multiple possible reasons for her symptoms: irritable bowel syndrome, a cyst, anxiety and "just a bad period". But, she says, "I knew it was more than that."

Doctors told her time and again that it could not be endometriosis - an incurable condition causing lesions and scarring on internal organs and around the body , external - because she was too young. Grace says her requests for further investigation were ignored.

Grace's periods began when she was 11, and by 13, she was having excruciating pains around the time of menstruation. She describes it as if "heated barbed wire" were wrapped around her abdomen: "It's like my organs are being pulled apart."

She is often bedbound and, whenever she has exhausted the painkillers she has at home, she has to go in to hospital, where she is regularly given morphine. She has also been given co-codamol and tramadol.

Dependency on strong drugs like opioids worries her. "It's scary," she says, "because I don't want to have to rely on them for the rest of my life."

But the most frustrating thing for Grace, and why she contacted BBC Your Voice, is because she does not feel medical experts recognise that teenagers and adolescents can suffer from endometriosis.

Grace's GP did not diagnose her condition and nor did the first consultant she saw privately.

She says: "Even a specialist didn't believe me. And if a specialist won't listen to me, who will?" It was not until the family pushed for a second private opinion that she got a positive diagnosis.

Endometriosis, which occurs when tissue similar to the lining of the womb grows outside it, can cause debilitating symptoms, such as pelvic pain, heavy periods and fatigue. About 10% of women are affected by it, according to NHS data.

This week BBC presenter Emma Barnett revealed she had to have a hysterectomy for her endometriosis - which she said she never wanted to have.

It can develop at any age once periods begin - and it is a common misconception that only older women suffer from the condition, says the charity Endometriosis UK,

Read the full article on BBC News Health ›

5News aggregated this summary from the outlet’s public feed. The full article, with all the context, is on www.bbc.co.uk — the content belongs to BBC News Health.

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